What is the Butterfly Foundation’s Lived Experience Committee?
The Lived Experience Committee has been established to review Butterfly’s policies, operations, and decisions, and provide recommendations to Butterfly’s Board of Directors to ensure lived experience expertise is embedded within Butterfly Foundation’s operations, strategy, and governance. The committee will also ensure decisions made by Butterfly’s board mitigate risks, avoid harm, and are in the best interests of people with living, and lived experiences of an eating disorder and body image concerns, including carers, family, and kin.
Sabrina has successfully delivered philanthropic growth in both large federated organisations and smaller non-profits, specialising in project management and fostering lasting relationships. Driven by a passion for fundraising to shift inequities, Sabrina was awarded the Fundraising Institute of Australia’s Young Fundraiser of the Year in 2024.
Inspired by her own lived experience and seeing firsthand the hard work of many charities, Sabrina is committed to giving back the generosity that was shown to her.
Sabrina is committed to making a positive impact with compassion and integrity. Her genuine enthusiasm for success is matched by her commitment to sustainability in the sector, for the next generation of leaders and emerging fundraisers.
Tharindu has a background in public health and community development, and is a proponent of youth participation and co-design. Having worked in mental health system reform and lived experience storytelling, he strives to work towards more accessible, culturally-safe and meaningful platforms for connection to people and place. Tharindu hopes to continue showcasing the power of community and the roles we can play in creating equitable spaces to thrive within now and into the future.
Kacey is a Māori wahine and doctoral researcher at the University of New South Wales, where she is researching Māori people’s experiences of eating disorders and disordered eating. She has been working in the mental health and lived experience advocacy space since 2022, having worked with several organisations, including The Butterfly Foundation and ACON.
Juliette is a tube-fed distance runner, Qld Government DFV honour roll inductee, and PhD candidate researching the psychosocial impact of navigating tube-fed life in a food-centric world. Having experienced a severe and enduring eating disorder while living with lifelong physical disability that impacts her ability to eat in typical ways, Juliette’s focus is on finding creative ways to support and amplify the voices of lived experience who are not routinely invited to the table, firmly believing this is the key to building a robust, inclusive and effective system of eating disorder prevention and care.
Megan is a non-executive director with 25 years of executive and management consulting experience across industries. She has held executive roles in marketing and strategy as well as working as a consultant in the areas of organisational development and change management.
Megan’s relationship with Butterfly began in 2020 when she called the National Helpline for advice about a family member who was experiencing an eating disorder. Being a part of the LE Committee is an opportunity to contribute her skills to an organisation that makes a huge difference for people experiencing eating disorders and theircarers on a daily basis, and she hopes her participation will help move the dial on early recognition of signs of disordered eating, dispelling myths about EDs and more easily accessible recovery options.
Varsha is an Indian-Australian youth advocate who has lived experience with an eating disorder. She seeks to talk about the intersection between race and eating disorders and do her part to destigmatise conversations around eating disorders in communities of colour.
Jeanette is an economist, public policy professional and mental health advocate. They draw on their consumer and carer lived and living experiences of complex mental health issues as a young, queer, migrant, disabled, neurodivergent and genderfluid person of colour, to amplify intersectional and marginalised perspectives in policy, research, and service delivery.
If you are ready to step share and contribute your lived experience insights, then you might like to join the Butterfly Collective, our lived experience network.
Do you need support for you or someone you care about?
Call our free and confidential Helpline on 1800 ED HOPE (1800 33 4673), chat online or email.