Talk to someone now. Call our National Helpline on 1800 33 4673. You can also chat online or email

Talk to someone now. Call our National Helpline on 1800 33 4673. You can also chat online or email

Lived Experience Network – Butterfly Collective

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Lived experience of eating disorders and body image concerns lies at the heart of Butterfly’s work as it connects us to our origins and the communities we serve.

By drawing upon lived experience wisdom and embedding it across all our work, we can ensure that our advocacy work, programs, projects, and services represent the diverse nature of our community and their needs.

What is the Butterfly Collective?

The Butterfly Collective is an online lived experience network involving people across Australia who either have a lived experience of an eating disorder or body image concerns or are a carer, family member, or friend of someone with a personal experience. . This community is designed to help Butterfly to amplify the voice of people with a lived experience by inviting its members to take part in activities which will help to shape our work.

Butterfly Foundation’s lived experience network can provide their insights into specific programs of work including, but not limited to,

  • research and evaluation projects
  • development of services and training
  • major campaigns
  • advocacy priorities
  • the work of the broader sector

Members of the Butterfly Collective will be regularly updated on the progress of the work they have contributed their time and  insights to, as well as being kept informed about the latest sector news and resources.

The Butterfly Collective represents our renewed commitment to listening, amplifying, and advocating for lived experience voices. Butterfly seeks to recognise the value of lived experience as a form of knowledge and draw on it as a force for positive change.

Who can join?

The Butterfly Collective is open to anyone who:

  • lives in Australia
  • is 16 years of age or older
  • has been affected by an eating disorder, body image concerns or disordered eating OR is a family member or loved one who has been/is affected

How do I join?

If you would like to help shape our work and share your wisdom as a member of the Butterfly Collective, simply register below.

Joining the Butterfly Collective is free and getting involved is voluntary. Enabling you to be a part of a community where you can opt in and out of opportunities as and when you need.


For more information about the Butterfly Collective or to get in touch about your membership please contact Butterfly’s Lived Experience Engagement Manager, Melinda Farrar-Rabbidge, at

Donate to support the Butterfly Collective

Please consider donating so that we can continue building and improving our community engagement platform, the Butterfly Collective to share lived experience stories, develop educational lived experience training, and increase opportunities for members to contribute to Butterfly’s work.

Donate now